Friday, April 23, 2010


What is Craniosynostosis?
Craniosynostosis is the premature fusing of an infants skull.
In December 2009, Blue Eyes (9 months at the time) was diagnosed with Craniosynostosis. It is the premature fusing of the skull's sutures. His doctor had never heard of it before. It occurs in about 1 in 2000 births. If it was left untreated it could have led to restricted brain and skull growth causing a lot of problems for him. He under went a 5 hour surgery at 10 months old to correct it. 3 weeks later he started pulling himself up finally and couch cruising! It was very exciting for us! We are working to raise awareness. Many doctors and families have never heard of it and it often goes unnoticed and untreated. If you have any other questions feel free to email me. To find out more about our journey you can read about it here. Here is a video I made of his journey. Pictures may be graphic to some.

1 comment:

  1. Such a touching video! Thank you so much for sharing this!!! Blue eyes is such a trooper and so cute!



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